scan update.

It’s a strange feeling when you feel so healthy, so alive, so normal but then you’re given x-ray vision as you skim the scans of your body and see what is really going on.

My body is complicated and complex. Yesterday, Dr. Nick went over the CT scans of my lungs, at the same time comparing them to past scans. Some cancerous nodules have gotten smaller, but not by much. And one nodule has definitely grown, you can see it be a bit larger than the others.

Honestly, I don’t know how they can tell what is what on those black and white scans. In my vision, to me the air in my lungs is the black night sky, and the nodules are like tiny little white stars scattered throughout, making unknown and undefined constellations within me. And the blood vessels that also show up white look like shooting stars; make a wish. I  wish on them for good health. I wish even harder that the cancer will go away.

Although my scans weren’t the best of news, I’m used to receiving this kind of news. Is that bad or sad that I’m “used to” this? But really, I am so used to so many things within the cancer world. I think I sometimes shock people with the ease and casualness that I speak about treatment, radiation and procedures. But this is just my life. After 14 years of being on and off treatment, being a cancer patient is my normal more than not being a cancer patient. It’s just as normal for me to talk about cancer as it is for you to talk about your job. Because in a way, fighting cancer is my job. I write cancer, I fight cancer.

Upcoming next in my battle is a biopsy. I’m actually getting this procedure done on Thursday, Valentine’s Day. This biopsy isn’t being done to diagnose but instead to get my tumor DNA tested and see all of the gene sequencing and gene expressions. (I hope I am saying all of this correctly; I never was well-versed in the sciences as I am the humanities.) We are hoping to get this in-depth cellular information to make better and more informed decisions regarding future clinical trials and treatments. The latest in cancer treatment is immunotherapy. These immunotherapy clinical trials are typically targeting a specific gene, so knowing if I do or don’t have that gene will be a great asset in decision making on treatments. Please pray that this DNA testing will be beneficial to my family and I and for a good, quick recovery! I’m always shocked at how painful a biopsy can be post surgery. Even though they are taking a small sample of the tumor, they are still removing something that is attached to me, even though I think of cancer in my mind as this separate entity within me. So please pray for the pain to quiet quickly!

I have been thinking more about pain recently. Before this period of good energy, I was experiencing significant pain again in my chest, my neck and shoulders, and a short, sharp pain behind the knee. All over just felt this achingness that stayed as loyal as my shadow. As I was experiencing this period of pain, my reading just so happened to align and give me insight. I’ve been reading off and on the past year really Rose From Brier, a collection of letters by early 20th century missionary Amy Carmichael. My dear friend Hannah gave this book to me as she had heard that it was a book Amy wrote from one ill person to another ill person. As someone who experienced much physical pain herself, she reflects:

“What if every stroke of pain, or hour of weariness, or loneliness, or any other trial of flesh and spirit, could carry us a pulse-beat nearer to some other life, some life for which the ministry of prayer is needed—would it not be worthwhile to suffer? Ten thousand times yes. And surely it must be so, for the further we are drawn into the fellowship of Calvary [the cross] with our dear Lord, the tenderer we are toward others, the closer alongside do our spirits lie with them that are in bonds; as being ourselves also in the body. God never wastes His children’s pain.”

p. 128 of Rose From Brier

God never wastes His children’s pain.

Doesn’t your heart just stop but also soar at the same time in hearing this? The spirit of God within me affirms this, that God does see and care about my pain. He more than just notices; He knows and He Himself experienced more pain on the cross than I could ever bear. He never forgets that I have cancer, that I have limp, that pain seems to bloom for a moment within me, a destructively beautiful flower blooming within me, it’s petals of glass cutting and tearing into me as its unfolding. I imagine there are still more seeds of these flowers waiting to sprout and scorn me.

But, God never wastes His children’s pain. One day in the future, when my soul flies to Him, He will comfort me as I hurriedly run into His arms. He will explain the whys that aren’t necessary to always know in this lifetime. Even though there is pain, He is still good.

He is still—always and forever, past and preset—immensely good.


I am still in the long process of transforming my blog into a book. If you would like to hear a recent update, check out my Kickstarter. Thanks again to all who have donated! Your support—financial, thoughts, prayers—means everything! This upcoming week I am participating in a writer’s workshop through your donations. I am very excited about this and hope it helps propel even more momentum for me in the editing and writing process. Thanks all for your encouragement to take this next step of faith to craft a book!

bright.

hello all.

It’s sunny, bright, cold and crisp today. It is the perfect January winter day in Ohio.

A week out from my chemotherapy transfusion, and I feel refreshed. The winter sun is energizing and at the same time calming, grounding me and fueling me. Its brightness is such an encouragement against the bleakness I usually feel.

I truly believe God has heard everyone’s prayers this past week for me. I honestly can’t believe how good I truly feel, just normal so quickly. I am not complaining, and I hope it lasts! I want to ride this energy as long as I can. Sustain me Lord to do your work! Keep me in this perfect peace, this relaxed and content state.

My pain has lessened. Looking back on the past few weeks, I should have experienced a sore and swollen throat, a side effect from radiation. I had been so worried about it, since the last time I had radiation to my neck, my throat was burned so badly from the inside out. These past few weeks though, I only noticed a tight constriction of pain whenever I yawned. I tried to hydrate with water and green tea to keep the inflammation down. Praise God for such little pain! What a relief!

My neck and shoulders also have been improving. I no longer feel this ache-y stiffness all the time, and my electric heated shoulder pad proves its usefulness daily. To begin to feel some freedom from such an intense pain for over a year now is a miracle! I cannot begin to express how much this impacts my mood, my mindset, my perspective, my quality of life. Thank you Jesus!

I hope this report brings brightness to your day, joy, and a clear reminder that God hears our pleas and listens to us in our time of need.